Life has been crazy busy here in the Miller household with appointments, school, homework, cub scouts, sickness, and soon to be birthdays. We’ve been moving close to 90 miles a minute with not much chance to sit down and relax. So I apologize for the lack of updates.
He’s doing well, struggling a little with math, but overall, good. Math isn’t his best subject, but he does fairly well most of the time. We’ve been working on math recently to bring up grades and speed. His grade has a daily assignment called “Fast Facts” where he has to do daily during math in school. Fast Facts are a list of math problems where they have about 3 minutes to complete. They’re currently on multiplication and subtraction.
On February 27th, Thomas and the boys are going camping with Alex’s Cub Scout pack, so keep them in your prayers for safety and fun.
He’s doing well too. He recently started speech therapy with College Station ISD and has to meet with his teacher at least once a week for 30 mins.
He was feeling better from the pneumonia & possible strep. When we had gone to the doctor last week, she said the back of his throat was really red. The rapid strep test came back negative so we aren’t sure if maybe he was just getting over it or what exactly. However, now he’s having high temps again and not wanting to eat, so another doctor visit is in store for tomorrow.
He’s starting to learn how to get up from his stomach to a sitting position so that is awesome news! We discovered it when we found him sitting up in his bed one day. He isn’t crawling yet, but we are working on it as a family and with his physical therapist.
We had met with his GI doctor earlier this month. Since John doesn’t tolerate milk or milk protein, we are giving him Pediasure Peptide mixed with his formula until we know for sure what’s going to be the best option for him. We see Dr. Ramprashad on March 11th to let him know how he’s tolerating everything. So far he seems to be.
Some more good news! John is wanting to eat solid foods. He’s actually showing interest in what Thomas or I am eating. I did express this to Dr. Ramprashad and he said to just “Let John take what he wants and do not push him”. Dr. Ramprashad believes John is about at the level of a 6 month old with feeds.
I have also been reflecting this past week on how different our life was 1 year ago. We were getting ready to become a family of 5 soon with no clue of what life would bring us when our little one came into the world. We were so excited! Our strength as a family has been tested quite a bit this past year. A good friend, sister in Christ, and fellow photographer shared a verse with one of John’s photos that has really stuck out since we’ve learned his official diagnosis of Catel-Manzke Syndrome.
“Before I formed you in the womb I knew you, before you were born I set you apart; I appointed you as a prophet to the nations.” Jeremiah 1:5 Also my favorite verse has been a real comfort this entire year as well “I can do all things through Christ who gives me strength.” Phil 4:13