At the moment John is still at Texas Children’s Hospital in Houston. Last night he slept while using a CPAP. It was intended to provide some assistance until a second sleep study could be scheduled. He slept well for the most part, but did wake a few more times than normal. I would too if I had a mask on my face.
Tonight, they’re going to perform a second sleep study. This time they’re going to focus on running titrations to determine how much air pressure he’ll need to maintain consistent breathing and reduce apnea events. If the results from tonight’s study are less than desired the doctors will regroup. Basically the next step would be surgical and would take place in Temple at McLane Children’s Scott & White.
As positive as we’d like to be, we’re mostly apprehensive and slightly skeptical. We by no means mean to sound pessimistic, it’s just that when he had his extended stay in May, there were so many times where we assumed the best and were disappointed when we were met with the worst. With that said, hopefully it’ll go well.
I haven’t had much time to explore this hospital. Jacqueline drove home Wednesday evening, then we both drove back that same night. I slept in the room then left early Thursday morning. From what I did see, it’s a little larger than McLane. One section that stood out was the design.
It has a whimsical, bright exterior. That’s the neat part. The not so neat part is that the front of the building is slightly concaved with many reflective windows. Stand in front of those windows and you get the feeling you’re standing in front of a giant solar oven.