May 26th – Tired

John did manage to put back on about 60 grams at today’s weigh-in. His surgeon was never able to inspect his g-tube site so it’s unknown if there are any issues referring to the leakage and balloon losing water. That should happen tomorrow. There is a glimmer of hope he may get to go home … Read more

May 16th – Respiratory Infection

John¬†gained a small amount of weight, but feedings have resumed so we expect to see better numbers over the next few days. His RVP results came back and he tested positive for human metapneumovirus & rhinovirus. Both are similar to the common cold, but are dangerous for infants if untreated. He’s had a few breathing … Read more