New Toys and a Project Update

John had his appointment with his pulmonologist, Dr, Chavez, last Wednesday in Temple. We addressed his reoccurring apnea events. Also the increase of oxygen he needs, especially while he is sick. Dr. Chavez says we will be putting him on a vent at night while he is asleep. If he is sick then it will be … Read more

May 23rd – 8.5

John put on another 40 grams this morning which brings him up to 8.5lbs. Nothing really new. We’re still waiting on a few test results. He did vomit at one of his feedings, but no adjustments have been made. They wanted to see if he’d tolerate the other feedings. Hopefully it doesn’t affect tomorrow’s weigh-in. -Thomas thomas@thomasmiller.me

May 17th – “Aunt B” and Uncle Dustin

“Aunt B” & Uncle Dustin stopped in today! John is on continuous feeds at 1 ounce per hour at night . He’s expected to remain on this amount when he comes home. Today he was tested to see how he would do on bottles. He did fairly well. His doctors would like to step up to … Read more

May 13th – Improvement

John gained weight last night. He went from 7lb 7oz to 8lbs 1oz, but he’s still going to need a g-button. He’ll remain on the continuous feed for tonight until 5am, then all food stops. He has an MRI scheduled for 10am and surgery for the g-button implant at noon. He had a swallow study today, and passed. … Read more

May 12th – Another Surgery & More Tests

John needs at least 18oz of milk in a day. He’s supposed to have 2oz every 3 hours and whatever he doesn’t finish within 20 minutes will go down his feeding tube. He’ll begin continuous feeds Monday night (tonight) at a rate of 1oz per hour. This will be a daily routine each night from 8p-8a. … Read more

May 11th – G-Button

John - May 11th
John David Miller – May 11th, 2014

Nothing really new today. John’s dayside doctors didn’t calculate his calorie/volume to determine if he’s taking in enough so this will be calculated tonight. They are expecting to make a decision on Monday whether or not he’ll need a “g-button” (surgically implanted feeding tube).

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May 9th – “Meyii”

John is continuing to improve with his feeds and breathing. We’re still waiting to see how the procedures have affected his weight gain. Thursday (today) was the first full day of his new feeding schedule. He’s currently on IV fluids and oxygen, although both are expected to be decreased and removed within the next few … Read more

May 8th – Evening Update on John

We decided to use our blog page vs. CaringBridge or Facebook.

John’s breathing tube was finally removed this morning and he was able to eat about 30 mils at around 2:45 this afternoon.

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The Speech Pathologist wanted to personally feed him.

He took it well, and now we wait to see

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