Doctors and more

We had some appointments over the past few days with different doctors. Here is a summary of our visits. Over the past few years, I have connected with other parents whose children have Catel-Manzke syndrome. Some of the questions were based on issues with their children. There is a soon to be 24yr old, 14yr … Read more

Catel-Manzke Syndrome: Our Journey

The road to adding John to our family was a long and difficult one. Thomas and I actually just decided to start trying right before Joseph turned 2 yrs old. Right as we decided is when we learned we were having our first of┬áseveral miscarriages. We finally learned we would be welcoming a healthy child … Read more

May 27th – Homecoming?

John┬áput on about another 60 grams last night. Woo! The surgeon was finally able to evaluate his g-button site. It was determine to be just a little too large for him, so a smaller tube was placed. How they managed to replace it with a smaller tube without surgery is a miracle to me. I … Read more