May 12th – Another Surgery & More Tests

He gets a tad "punchy" sometimes.
He gets a tad “punchy” sometimes.

John needs at least 18oz of milk in a day. He’s supposed to have 2oz every 3 hours and whatever he doesn’t finish within 20 minutes will go down his feeding tube. He’ll begin continuous feeds Monday night (tonight) at a rate of 1oz per hour. This will be a daily routine each night from 8p-8a.

The surgeons are going to evaluate him for the “g-button” Tuesday morning and he may have an upper GI. His surgery could be Tuesday afternoon at the earliest, but it would most likely fall later in the week. When the surgery is complete he’ll remain hospitalized until he gains weight consistently.

Yes, children like to be surrounded with the warm embrace of stainless steel.
Yes, children like to be surrounded with the warm embrace of a stainless steel crib.

Finally, a swallow study is scheduled for around 2:15p Tuesday and at some point he’ll have an MRI & full skeletal X-ray. His geneticist wants to share his information with another hospital to perhaps help provide an explanation for his condition.

-Thomas
thomas@thomasmiller.me

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