May 13th – Improvement

"Skyping-In" with dad.
“Skyping-In” with dad.

John gained weight last night.
He went from 7lb 7oz to 8lbs 1oz, but he’s still going to need a g-button.

He’ll remain on the continuous feed for tonight until 5am, then all food stops.
He has an MRI scheduled for 10am and surgery for the g-button implant at noon.

He had a swallow study today, and passed.
He also received a full skeletal X-ray which will be sent to Texas Children’s Hospital in Houston for a second opinion of his overall condition.

We’re getting there.
Possibly light at the end of the tunnel?


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