October 8th, 2014 – John is so happy, and is acting like nothing ever happened.
He passed his swallow test, so hopefully starting Thursday we can slowly feed him by mouth in addition to his g-button feeds. On Monday morning we had his first trach change. He decided to scare the NICU nurse & respiratory therapist by coughing the trach out. I changed my first trach today. It went fairly well. Tomorrow we will be learning trach CPR. Also I will get another chance to change the trach because Thomas is coming up to learn how to change it as well and for the CPR training. If all goes well, we could be discharged on Friday. Yay!
Monday evening, I left the hospital to prepare for Joseph’s tonsillectomy, ear tubes, and hearing test on Tuesday morning. Everything went well. He ended up having his adenoids removed too as they had grown back from a previous surgery. He also passed his ABR (auditory brainstem response) hearing test.
After his surgery my mother dropped me off in Temple to be with John again.
So far, so good.