Joseph started 1st grade this year. He was all excited to go. It seemed like he was trying to tell Thomas, John, & I all to leave the room as soon as we walked in. His most exciting thing from the first day was in Science class was they mixed Lemon soda with pixie … Read moreSleep Study Results
August 1st John met with the Trach vent clinic team, which consists of his ENT, pulmonary, trach specialist, speech, & dietitian. ENT Dr. Powitzky was pleased with John. He said everything looked great with his tubes, trach site, the tonsil and adenoid removal. He wants to follow up with John in 3 months unless something … Read moreDoctors, Sleep Study & a 6yr old!
On Tuesday we traveled to Kileen, Texas to get John’s new SMOs (Supra Malleolar Orthosis). These braces will force John’s ankles to go back straight vs inwards and his feet to go straight vs outwards. John is required to wear them 8 hours a day. He is allowed to wear them while napping and take … Read moreSMOs & New Word
This is a very over due post. I have just had a very crazy past month with doctor appointments and traveling for a funeral. First up is John’s results from ECI on where he is developmentally. Adaptive average is 16 months with a 40% delay. That breaks down to self care he is at a … Read moreDevelopmental Levels & Traveling