October 28th, 2014 – Life has been busy as always since we came home from the hospital. We’re still adjusting to everything, but overall it has gotten much easier over time. We had a follow-up appointment from our hospital discharge on October 23rd with Dr. Meyers, his pediatrician. John weighed 14lbs 10oz. I had discussed with the … Read more
October 20th, 2014 – A lot has happened in the past 3 weeks. Just 3 weeks ago John was getting ready to have his trach surgery, Thomas & I had to travel to the Ronald McDonald house in Temple to stay the night before. I was a nervous wreck because my baby had yet another surgery. … Read more
October 13th, 2014 – We’re home! It took a few extra days to get his equipment, but we were finally discharged Monday afternoon. More family updates to come later. I gotta sleep.
October 8th, 2014 – John is so happy, and is acting like nothing ever happened. He passed his swallow test, so hopefully starting Thursday we can slowly feed him by mouth in addition to his g-button feeds. On Monday morning we had his first trach change. He decided to scare the NICU nurse & respiratory therapist by coughing … Read more
October 1st, 2014 – John is doing very well. His breathing has improved exponentially. He’ll be in the PICU at McLane Children’s for at least a week, which is standard with trach surgery. After a week, he’ll then be moved to a regular room and remain there until his doctors are comfortable with our training … Read more