It’s been four months, but seems like only yesterday when John was born.
Thomas, Alexander, Joseph, and I had woke up to attend church. I was having contractions but at the same time I had been having them for a while with not enough dilatation to be admitted to the hospital. We went to church and I sat during most of the singing songs part of the service because I was having to focus a bit more through them.
I texted my friend Monica, who we made prior arrangements with asking if she could watch the boys. She said she would be home in about an hour later after we got out of church. I started drinking a lot of water hoping the hospital wouldn’t make me drink anymore when I arrived to try to stop the contractions. Every time I’d go to the hospital previously it would turn out to be false labor. Also at the same time Thomas & I were getting everything ready to have the boys spend the night at Monica’s in case I was admitted.
Alexander was a little disappointed thinking he was not going to get his meatloaf he requested for his birthday dinner (I make whatever is requested by the birthday person for dinner.) I did inform him that Monica would be able to make it since I had pre-made his birthday cake the night before as well as mixed the meatloaf that morning hoping to be able to cook it when we got him. He was happy then as well as happy with the thought of sharing his birthday with his little brother or sister. (For those who don’t remember we did not know if we were having a boy or girl since I really wanted to be surprised).
When we arrived at the hospital I had to go through pre-admission since I had yet to be able to fill out everything. I guess they wanted to cover all their bases in case it was true labor and I wouldn’t be having to fill out forms while they were trying to admit me. I was at a 3 when I was checked at Labor & Delivery triage. The nurses said they would check again in an hour. 45 mins later they checked my progress only to have me at 4 1/2. So obviously I was being admitted. It was around 7p. At 9:56p John was born weighing 7lbs 20z & was 20in long.
Fast forward four months later…I would never have suspected the road that we have traveled with him would of been anything like it has been, and it has been quite a travel with everything that has happened.
On to the news:
4 month check up:
He weighs 9lbs 15oz and is 23.75in long as of Tuesday, 6/24. John’s Pediatrician would like for us to change his feeds a little. Hopefully lessen the amount of time he is on the pump during the day, but still get the amount of food if not increased hopefully that he currently receives. Right now his feeds are at 9, 12, 3, 6: He receives 40-45mls via mouth in 10 mins & 45mls via button over 2hrs. 8p-8a: continuous feeds at 25mls/hr. We are trying to switch to 40-45mls via mouth in 10 mins & 40 mls via button over 1 1/2 hrs. 8p-8a: continuous feeds 30mls/hr. Also Doctor would like for us to have ECI or at least some sort of physical therapy with John starting soon because of his muscle tone still being weak.
John came home after his 4 month check up only to have me place him in the crib and realize his g-button had came out. (Insert me freaking out a little trying to get it back in as soon as possible.) A few moments later to discover that the balloon that held it in place had been busted. I managed to get a temporary one in and then Thomas, Joseph, John and I drove to Temple to have it examined and the button replaced.
We get to Scott & White McLane Children’s Clinic to have Dr. Little look at it. One of the residents replaces it with a better tube (since I had used the temporary foley that was given to us in case we were unable to get the g-button back in). They also had us go next door to the hospital for an X-Ray to make sure everything was where it needed to be. During the first 4 months of a g-tube surgery they’re a bit more concerned since items are still healing. All was well.
Sleep Study update:
We are still working on getting this scheduled.
Texas Children’s in Houston:
I received a call from Dr. Blazo (Genetics) letting us know a hospital in Houston is interested in examining John to hopefully learn more about Catel-Manzke Syndrome. Now I am just waiting for a call back.
We’ve found a temporary nurse. She’s a school nurse and can help until school resumes. We’re still hoping and praying we find a full-time nurse as soon as we can. If anyone knows of anyone looking for something please let us know and we can forward their information on to the home health agency, Angels of Care, for review. Basically a CNA, LVN, or RN certification are the prerequisites, but it’ll be at the final discretion of the agency.